Do you know someone with PLN?
As a foundation, we want to share as much important information about PLN as possible. We are here for carriers to inform and support them where we can. We are also here for you as a family member, friend, acquaintance, or any other involved person. How can you deal with PLN in your environment?
Family member of someone with PLN?
Has someone within your family been diagnosed with the PLN mutation? Because PLN is a genetic heart muscle disease, this may mean that you might also be a carrier of the mutation The carrier within your family has received a family letter from the cardiologist. What can you do next?
For Close Ones
Are you not a carrier of the PLN mutation but closely involved with someone who carries the mutation? We have 5 tips for you!
Some carriers experience many symptoms due to the disease, including chest pain, fatigue, shortness of breath, heart rhythm disturbances, and sudden cardiac death (in rare cases). Be understanding and help a carrier to set and respect their boundaries.
Some carriers may not show visible symptoms. However, this does not mean that these symptoms do not exist. Be understanding to carriers who may appear symptom-free from the outside. You never know what they are experiencing.
As a foundation, we invest a lot of time, energy, and money in providing accessible information about PLN. We do this because we value raising awareness about the disease. Therefore, you as loved ones can also go through the information on our website to get a better understanding of the disease.
Do you want to learn even more about PLN and interact with like-minded people? You are always welcome to attend one of our information sessions or other events. These are free to attend, and you will always gain new knowledge and meet new people.
Is someone in your environment affected by PLN? This news may also affect you! That’s why we want to mention that you can also seek professional support.