The NHLI manages the CURE-PLaN project to ensure smooth operations. They foster collaborations among all cardiology departments of universities throughout the Netherlands. Additionally, they focus on promoting young medical scientific talent.
Achieving a PLN-Free World Together
Thanks to our colleagues and partners, we are working towards a world without PLN! We are grateful to each of them for their contribution to our mission, and they each contribute in their own unique way. Do you have a passion for this rare disease? We are always open to new partnerships.
Medical Scientific Partners
Our medical scientific partners support us in fulfilling our mission. With their project management, research, and expertise, we are taking steps together towards a PLN-free world.
Netherlands Heart Institute
The Hearts Bank
The PLN Foundation is co-founder of The Dutch Hearts Bank. This is a central biobank where heart tissue from deceased donors is stored. Thanks to this biobank, scientists can better investigate what goes wrong in various heart diseases. The foundation closely collaborates with the Hearts Bank.
CURE-PLaN is a network of scientists from all over the world. Thanks to this transatlantic collaboration, scientists gather twice a year, once in Europe and once in America. These meetings ensure that research progresses swiftly and that scientists are aware of each other’s work and progress.
Since 2020, our foundation has been closely collaborating with the subsidy agency Catalyze. They assist us in obtaining funding for various partnerships. Catalyze specializes in identifying suitable subsidy opportunities and preparing grant applications. Their expertise helps us achieve our goals.
The foundation has established this company, a bio-tech start-up, to support and accelerate the process of developing and introducing new therapies for PLN R14del. Thanks to this start-up, the foundation has a solid foundation to ensure effective and accessible treatments for patients.
With our communication partners, we ensure that we reach all of you. With our communication partners, we ensure that we reach all of you. We do this both online and offline, but always with the goal of connecting you with each other or introducing more people to PLN.
With the help of Anne van Almkerk from Studio Solveig, we have created and published our new website (which you are currently looking at). Thanks to the website, as a supporter, participant, or sponsor, you can see all the activities of our foundation and how we are committed to a world without PLN. Our website serves as a crucial foundation.
Thanks to Anika Kok, our blood bus has received a beautiful makeover, as she developed the design for our bus. Now, we hit the road in style! Anika is a graphic designer who has assisted us with various projects. With her help, we can convey our story through design.
SAY NIK Media
Nikki Pommer from SAY NIK Media is responsible for the communication of the foundation. This includes the content of the website, our social media accounts, and the distribution of press releases. Through our (online) communication, we are working towards a very important mission: increasing awareness about PLN.
Great ideas are meant to be executed. Zeeman Reclamegroep took care of bringing a good idea to life: thanks to them, Anika Kok's design was wrapped onto our blood bus. Now, everyone can see and find us, giving us even more recognition and visibility.
Thanks to our sponsors, we are able to realize our plans, as they support us with financial contributions or their services. We are happy to collaborate with these partners to eradicate PLN from the world and work towards an affordable treatment for the disease.
Gerben Dijkstra supports us on behalf of Envis in the field of ICT. This ensures secure work practices, enables everyone to reach us via email, and ensures the safe storage of data. No question is too difficult for him, and he always ensures that we find a solution when there is a problem.
The Lease Company
TLC, was founded in 2006 by Eric R. Kok. He is a board member of the PLN Foundation and provides support to us in various ways. For instance, he sponsored the support vehicle during a PLN Monstertocht (a cycling event). Eric also organizes the PLN Gala in November on behalf of TLC. This event aims to attract sponsors.
The Contribute Foundation has taken up the funding of the PLN Blood Bus. This allows us to travel across the country in style with our blood bus, which also serves as a biobank. With this initiative, we collect blood from carriers and family members, enabling us to conduct even more research on PLN.
Becoming a Collaborative Partner with the Foundation
We are always seeking constructive collaborations to eliminate PLN from the world. This can take the form of a donation, initiative, or becoming a collaborative partner. Our colleague Marise will gladly connect you with Evert, our secretary.