Our foundation was established to conquer the life-threatening heart muscle disease PLN (scientific name p.Arg14del). Chairman Pieter Glijnis was confronted with the PLN heart disease in 2011, which turned his life as a succesful entrepreneur upside down. Eventually, it became his life mission to find an affordable treatment for the disease. We now work with various board members, scientists, professionals, and volunteers towards finding a solution through the foundation.
The PLN Foundation is constantly engaged in scientific research and projects. Over the years, we have expanded our network with (inter)national collaborations of renowned Dutch and foreign research centers. Thanks to you and your donations, the foundation can focus on research into diagnostics, treatment, and cures for heart muscle diseases caused by a Phospholamban gene mutation (PLN).
Professor Dr. Roger Hajjar, Professor Stephan Lehnart, Professor Menko-Jan de Boer MD, PhD, FESC, FACC Cardiologist, family doctor Beau Meijer, and Luuk Kerckhaert, a medical student at Leiden University Medical Center, serve as unpaid scientific advisors to the PLN Foundation. Together with you, Stichting PLN has the following objectives:
PLN Foundation: the foundation
of patients for patients
Our foundation was established by volunteers, i.e., patients with PLN, family members, and their loved ones, aiming to provide as much information as possible to PLN carriers about the latest research developments. Additionally, we connect carriers online and offline to share their own experiences and dilemmas because supporting each other in this process is essential! Below is an overview of all our PLN-related activities:
Do you want to learn more about the PLN mutation and its impact on your heart? Are you interested in the progress of our research? Would you like to connect with fellow carriers? Then, attend one of our regional PLN information meetings!
Check here for the upcoming PLN information day.
The mutation was discovered in the Netherlands in 2010 and is believed to have spontaneously originated between 1200 and 1400 in someone from the southeast of Friesland. All carriers of the mutation in the Netherlands are descendants of this one Frisian ancestor, and we are looking for our ancestor. Read our call for genealogy research here.
We regularly keep you informed about all PLN-related matters and ongoing or upcoming activities of our foundation. If you want to receive this important news directly in your mailbox, you can sign up for our newsletter. you can sign up for our newsletter. You can opt-out of our digital publications at any time (Opt-Out Privacy Law) if you wish.
Regularly, you can participate in our online polls as your opinion matters. The topics can vary from ethical questions to small research about your own experiences with specific situations. Check our website and social media for more information, and let your voice be heard!
On our website and social media, you can read the experiences and personal stories of other PLN patients. Would you like to help others in our PLN family with your own story? You can always contact us about this and write a short article about your experiences. Your story will be published on our website and shared on social media. If you prefer, you can make your story anonymous – we fully respect your privacy.
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Our Dutch Board
Jan van der
Evert de Boer
Dr. Yolande Appelman
The board members receive no compensation or expense reimbursements for their services.
Our Dutch Office Team
Corné van Dam
Volunteer events & fellow sufferers
We are supported by many other volunteers and scientists.
“During my recovery after my cardiac arrest, it became clear to me that I am not the only one whose engine is sputtering. I started to delve into questions about vitality, nutrition, and heredity and quickly realized that there are defects whose cause is not so easy to define. I met passionate experiencers who have the heart to search for solutions. I became fascinated by their energy and joined. I now occasionally turn my backpack full of work and life experience on the table of Stichting PLN to contribute to an important search for solutions.”