5 x tips to contribute to affordable treatment for PLN
Would you like to contribute to affordable treatment for the incurable orphan disease PLN? You can! We desperately need your support in our fight against the disease. You can do…
Carrier & volunteer Annette speaking: ‘I experience it as new, because an exchange heart sounds so second-hand’
As the PLN Foundation, our primary mission is to find affordable treatment for PLN. No expense is spared to achieve this goal. In addition, we believe it is important to…
5 x ways for loved ones to support a PLN carrier
The news that you are a carrier of the PLN mutation comes to everyone differently. Whereas one person can disregard the news relatively quickly, for another it may take longer.…
Een welkom thuis voor Jan
Special action for Jan, welcome home!
Every month, committed supporters and loved ones start actions on our dedicated fundraising website. All money raised through this website is 100% dedicated to scientific research. Thanks to this research,…
Emmy rent de halve marathon!
Emmy is running the half marathon for her brother and the foundation!
Every month, committed supporters and loved ones start actions on our dedicated fundraising website. All money raised through this website is 100% dedicated to scientific research. Thanks to this research,…
Our Scientific Officer Annet on working at the foundation: ‘What I like about the foundation is that we make sure that researchers do cooperate with each other’.
From Venlo to Amersfoort, from there to Boston, then back to Groningen and now working in Wieringerwerf! Our new Scientific Officer Annet Linders joins our team since September 2023. Thanks…
C&W de Boer Foundation
Thanks to the support we receive from C&W de Boer Foundation, we have a fine partner in our midst that helps us achieve our goals thanks to financial support for…
PLN goes global: a podcast interview in the United States with Dr. Dean Jansen and Tom Bijvoet
We are working hard to increase awareness of PLN: by creating more awareness around the disease, people can anticipate more quickly when they have symptoms. In addition to raising awareness…
Job trotseert het Noorse asfalt
Devouring Norwegian asphalt while contributing to affordable treatment for PLN: Job does it!
Growing up in Friesland, with Groningen parents. PLN has its origins in this province. This is how Job Hamming's personal connection to the disease arises. In June 2023, he will…
Our science department visiting Göttingen
Last week our colleagues Pieter (Chairman), Corné van Dam (Scientific Advisor) and Luuk Kerckhaert (Scientific Officer) visited the researchers at Heart Research Center, Universitätsmedizin in Göttingen. "PLN research is critical…