For young people
This page was created specifically for young people between the ages of 16 and 35. Our volunteers often speak with young people of these ages. We understand that you have questions about how to live with the PLN mutation. On this page, we want to answer your questions as best we can. Therefore, please take your time to read everything at your pace. Do you have any questions and/or comments? Feel free to send us a message.
Living with the PLN mutation
You’re young and you want something! The world is at your feet, but then you hear that you are a carrier of a genetic heart muscle disease. That’s not easy news. You are not alone! At the PLN Foundation we are one big family, because we all have the same Frisian ancestor in whom the PLN mutation started. We would like to show you what to consider and what is possible.
Want to know more about the PLN mutation or topics such as mortgages or insurance? We have created a page with even more information on important topics for PLN carriers and loved ones. Are you missing a topic? Then email us at communicatie@plnheart.org.
In contact with other young people
It’s nice to connect with young people who understand what you are going through. That makes you less lonely. That’s why we bring young people together through offline and online ways. Do you need to connect with PLN youth?
Visit the PLN Youth Day
PLN Foundation organized a special PLN Youth Day for the first time in 2024 called PLN, You’ll Have It! During this day you could ask questions to a cardiologist, share your experiences and get in touch with other young people. The day was a great success, so there will definitely be a sequel. Keep an eye on our calendar to register for the Youth Day.
Sign up for the PLN app
We have our own app! In this app you can easily get together with other young people. In the app various messages are posted by other PLN carriers. Of course, you can respond to these. In addition, there is a special group that includes only young people with PLN. This way you can also get in touch online and talk about what is important to you.
Learn to understand PLN better
It’s nice to connect with young people who understand what you are going through. That makes you less lonely. That’s why we bring young people together through offline and online ways. Do you need to connect with PLN youth?
PLN knowledge base
We have created an extensive knowledge base on our website. Here you will find scientific articles, for example, explained in normal human language.
Videos about PLN
With the PLN Podcast, we bring knowledge and stories about PLN to your favorite streaming service. Listen to the first episodes as soon as they are online.