Skip to content
HELP US
Facebook Linkedin Instagram Youtube
  • Our Agenda
  • Our Agenda
Search
  • PLN Heart Foundation
  • What is PLN?
  • For carriers
  • For Close Ones
  • Fellow Carriers & Stories
  • Contact
  • PLN Heart Foundation
  • What is PLN?
  • For carriers
  • For Close Ones
  • Fellow Carriers & Stories
  • Contact
HELP US
  • PLN Heart Foundation
  • What is PLN?
    • Belangrijke feiten
    • Het gen en symptomen
    • Diagnose en behandeling
    • Erfelijkheid & familieleden
    • Stamboomonderzoek
  • For carriers
    • For young people
  • For Close Ones
  • Fellow Carriers & Stories
  • Contact
  • PLN Heart Foundation
  • What is PLN?
    • Belangrijke feiten
    • Het gen en symptomen
    • Diagnose en behandeling
    • Erfelijkheid & familieleden
    • Stamboomonderzoek
  • For carriers
    • For young people
  • For Close Ones
  • Fellow Carriers & Stories
  • Contact
HELP US
  • About Us
  • Alcohol use
  • Collaborations
  • Complaints Procedure
  • Contact
  • Crazy Ideas
  • Disease progression
  • Drug use
  • Etiological research
  • Fellow Carriers & Stories
  • Festivals with PLN
  • For carriers
  • For Close Ones
  • For young people
  • Help Us
  • Home
  • LinkTree
  • News
  • News
  • Nienke Leone
  • Our Agenda
  • PLN Biobank
  • PLN Heart Foundation
  • PLN Spark Grant
  • Pregnancy
  • Research
  • Sports with PLN
  • Surroundings
  • Test platforms
  • Testing & Checks
  • The press
  • Therapeutic research
  • What is PLN?
  • Read more about the article Information afternoon | Saturday, March 23, 2024 | Zuidbroek

    Information afternoon | Saturday, March 23, 2024 | Zuidbroek

    • Post author:Nikki
    • Post published:19 December 2023
    • Post category:Calendar
    • Post comments:0 Comments

    On Saturday, March 23, 2024, we will host another information afternoon on behalf of the foundation. This is the first afternoon of information this year. With the information afternoons, we…

    Continue ReadingInformation afternoon | Saturday, March 23, 2024 | Zuidbroek

    Monstertocht by Job Hamming 2023

    • Post author:Anne
    • Post published:22 June 2023
    • Post category:Calendar
    • Post comments:0 Comments

    On June 17, 2023, Job Hamming will be cycling the Monstertocht in Norway. This is a cycling journey from Trondheim to Oslo, covering an impressive distance of 568 kilometers, which…

    Continue ReadingMonstertocht by Job Hamming 2023

    Official PLN Gala for Fundraising 2023

    • Post author:Anne
    • Post published:22 June 2023
    • Post category:Calendar
    • Post comments:0 Comments

    On November 9, 2023, we are organizing a PLN Gala to raise (new) funds. The scientific breakthroughs we are achieving on the path towards an affordable treatment are significant, but…

    Continue ReadingOfficial PLN Gala for Fundraising 2023

    PLN Information Day

    • Post author:Anne
    • Post published:22 June 2023
    • Post category:Calendar
    • Post comments:0 Comments

    On June 17, 2023, our team will be hosting an information session about PLN in Drachten. During our information afternoon, we will provide insights into the disease itself and its…

    Continue ReadingPLN Information Day
    Read more about the article PLN: You will have it! | Saturday, April 20, 2024

    PLN: You will have it! | Saturday, April 20, 2024

    • Post author:Nikki
    • Post published:19 January 2023
    • Post category:Calendar
    • Post comments:0 Comments

    On Saturday, April 20, we are hosting a special Youth Day called PLN: You Will Have It! This day is all about coming together, meeting peers and talking about what…

    Continue ReadingPLN: You will have it! | Saturday, April 20, 2024

    Blijf op de hoogte

    We versturen gemiddeld 1 keer per maand een e-mail naar mensen die op de hoogte willen blijven van ontwikkelingen rondom de stichting en PLN. Zo hebben we het over acties, informatiemiddagen en updates rondom het onderzoek naar PLN.

    Onze stichting is opgericht door vrijwilligers en mensen die lijden aan de PLN hartspierziekte, familieleden en hun dierbaren, en probeert mensen met het PLN-gen te informeren over de laatste ontwikkelingen en studies over PLN.

    Over stichting PLN

    • Ons team
    • Voor de pers
    • Voor de wetenschap
    • Partners & sponsoren
    • Dit hebben we bereikt
    • De weg naar een behandeling
    • Werken bij Stichting PLN

    Help mee

    • Doneer nu
    • Start een actie
    • Word vrijwilliger
    • Periodiek schenken
    • Bijdragen aan onderzoek
    • Contact

    Volg ons via social media

    Facebook Linkedin Instagram Youtube
    •  
    •  
    • © Stichting PLN, 2025
    Help mee