On June 17, 2023, our team will be hosting an information session about PLN in Drachten. During our information afternoon, we will provide insights into the disease itself and its origin. Additionally, we will invite interesting speakers to share updates on current treatment methods and breakthroughs in scientific research. It will be an accessible and approachable event to discover more about PLN and its current state of affairs.
- 11:00 AM - 12:30 PM: Blood collection with the blood bus
- 12:30 PM - 1:00 PM: Information session registration and welcome
- 1:00 PM - 1:15 PM: Opening remarks by Luuk Kerckhaert and Annette Klinkert
- 1:15 PM - 1:35 PM: The impact of the PLN mutation on the heart and current treatment methods
- 1:35 PM - 1:55 PM: PLN inheritance and misconceptions surrounding genetic testing
- 1:55 PM - 2:15 PM: Break
- 2:15 PM - 2:35 PM: PLN and research: progress towards treatment methods
- 2:35 PM - 2:55 PM: PLN and rehabilitation
- From 2:55 PM: Q&A session