Commissioned by UMC Utrecht, director Max Baggerman and producer Room for Film, are making a documentary. This documentary is about treatment options for people with PLN. Very specifically, research is being done on gene therapy. Are you a carrier of the PLN mutation or closely related? Read on quickly.
The director and producer of the documentary would like to get in touch with carriers of the PLN mutation or people closely involved with a carrier. Indeed, they are eager to engage in conversation to learn more about the experience of the disease and the complex considerations that may come into play during treatment.
They are also looking for people who want to tell their stories on screen in this documentary. They are organizing a joint conversation that will cover four different topics. This conversation is filmed and its function is to create a perspective in the documentary: what are patients’ considerations?
The goal, on the one hand, is to create adversarial hearings on important issues. There is also room to highlight the emotional aspect of this. Do not hesitate to email with interest or questions. You can send an e-mail to idris@roomforfilm.com.