PLN Monster Tour


After two years of cancellations due to COVID-19, we are back at the start of the Styrkeprøven this year! The monstrous ride from Trondheim to Oslo in the weekend of 17 – 19 June.


Den Store Styrkeprøven”, or “the great test of strength” ….. 568 kilometers, 3627 vertical meters in 24 hours. The Styrkeprøven is one of Scandinavia’s most famous long distance tours and is organized around midsummer day and night, when it is dark for only 2 hours.


This year again a top team is cycling for the PLN Foundation: doctors, scientists and other stakeholders are committed to raising money for a treatment method for PLN. Will you support our cyclists too? Check!


You can find an impression of the previous editions here:


2019: LINK


2018: LINK


(PLN Foundation knows no strings attached. All donation proceeds are 100% dedicated to our research goals. Expenses are reimbursed by various sponsors).

PLN Family Day

Keep Saturday 10 September 2022 free in your agenda!

All carriers of the PLN Arg.14del mutation in the Netherlands are descended from the same Friesian ancestor. So we are all related to each other. That is why we are organizing the PLN Family Day!

Sports enthusiasts can choose from two distances:

6*14KM (84)

8*14KM (112)

We will also organize a tour with activity for recreational cyclists of 42 KM (3×14).

In the afternoon we will also be some activities at the PLN HQ. Everyone can create an action via our action website ( to raise money for PLN research during this day.

More information about this day will follow!

(PLN Foundation has no strings attached. All donation proceeds are 100% spent on our research goals. Expenses are covered by various sponsors).

PLN Information Afternoons

Want to know more about the PLN mutation and what it does to your heart? Would you like to know how our research is going? And would you like to meet fellow sufferers? Then come to one of our regional PLN information afternoons!


Because it is not yet wise to get together in very large groups, we have decided to organize smaller, regional information meetings. The vast majority of carriers live in the northern provinces. Our volunteers have been thinking along with us and so we have been able to secure the following locations:


Saturday afternoon, June 11, 2022 in Theater “Het Postkantoor” in Bovenkarspel (North Holland)

Saturday afternoon 2 July 2022 in Hotel Oostergoo in Grou (Friesland)

Saturday afternoon October 1st 2022 in Fletcher Family Hotel Paterswolde (Groningen)

This year we will also come to Ameland. The volunteers there are working hard and that date will follow.

Provisional times: between 13.00 and 15.30 hours.


Two years of uncertainty, from infection wave to lockdown and from overcrowded hospitals to corona passports. None of it has been easy. The PLN Foundation team missed you very much, too. And a webinar may be a good way to provide information…after all, nothing beats face-to-face.


Be sure of a spot and sign up for one of these afternoons! Send a message with your details to The sooner we know you’re coming, the better.

Keep an eye on our website or social media for further information about the meetings in the near future.


Would you like to help us on one of these afternoons, or do you have any contacts with the press to get more attention for PLN in the area of Bovenkarspel, Grou or Paterswolde? Do you think we should come to your area and you want to help us? Then send a message to


Note: COVID-19 is really not out of this world yet. PLN carriers who are already sick or transplanted still need to remain extra careful. The rules may have been relaxed, but that has caused additional contamination. So stay careful!

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