Nienke Leone gives PLN a voice: “I hope this song brings more attention to the disease”
For years she wrote for other artists, but recently made her debut as an artist. And how! The song “Crying in the Cinema” was written especially for Nienke’s childhood friend who lost her father to PLN. That’s how she became involved in the foundation. “I hope this issue will bring more attention to the disease,” […]
This was the first PLN Youth Day!
On Saturday, April 20 at Van der Valk in Hoogkerk, Groningen, the first official PLN Youth Day was organized. Under the guidance of an engaged group of volunteers, young porters and their stakeholders were able to get to know each other better, share experiences and ask their questions. We look back on a successful, enjoyable […]
Scientific Officer Annet defends her thesis and obtains doctorate
Monday, April 8, was the day: Scientific Officer Annet Linders defended her PhD thesis entitled “In vitro modeling of chemotherapy-induced cardiotoxicity” after 5.5 years of research “In vitro modeling of chemotherapy-induced cardiotoxicity” Annet has now been working for the foundation for six months. She answers scientific questions from carriers and takes care of scientific projects […]
Ijsselrunners challenge themselves to jog 15 kilometers to run PLN out of the world
Every month, committed supporters and loved ones start actions on our dedicated fundraising website. All money raised through this website is 100% dedicated to scientific research. Thanks to this research, we can work towards eradicating PLN and getting closer to a treatment. We are enormously grateful to our supporters for this support and are therefore […]
Roxanne commits to the PLN Youth Day: ‘It’s very important that we talk to each other about it’
On Saturday, April 20, 2024, we will host the first official PLN: You’ll Have It Youth Day. This day is for young people ages 16 and up through young adults up to 35. Partners, parents and others are also welcome. During this day, we talk about what it means to have PLN. Thanks to the […]
Nanoparticles as solution to target gene therapies to the heart
Gene therapies are a promising treatment option for genetic heart muscle diseases such as PLN. In such a disease, gene therapy can address the cause and then prevent the development of symptoms. This is unlike current treatments. These are aimed only at reducing symptoms. The underlying disease process continues. A major challenge for this group […]
Joost collaborates on PLN Youth Day: ‘From then on, as children, we were under annual check-ups with the cardiologist’
On Saturday, April 20, 2024, we will host the first official PLN: You’ll Have It Youth Day. This day is for young people ages 16 and up through young adults up to 35. Partners, parents and others are also welcome. During this day, we talk about what it means to have PLN. Thanks to the […]
DWORF: A small protein with big impact
Researchers at UMC Groningen recently made a major breakthrough in their search for a treatment for the heart muscle disease PLN, a disease caused by an error or “mutation” in the PLN gene. In their scientific publication, they describe experiments with mice carrying the PLN mutation. On these mice, they tested the protein DWORF as […]
A look back at 2023: ‘There is light at the end of the tunnel’
How do we look back on 2023 as the PLN Foundation? The short answer: good! We made fantastic breakthroughs and raised the visibility of the disease. The last days of the year pass and we look back on the past year and what it brought us. Curious? Read on quickly! In 2023, we look back […]
5 x tips to contribute to affordable treatment for PLN
Would you like to contribute to affordable treatment for the incurable orphan disease PLN? You can! We desperately need your support in our fight against the disease. You can do more than you think! Thanks to the tireless efforts of our volunteers, professionals, collaborative partners and supporters, we truly make a difference. Find out in […]